Her mum Whitney Morris, 21, from Wigan, has launched a campaign on gofundme so she can transform her home into a Christmas wonderland decked out in hundreds of lights.
The mum-of-two told Manchester Evening News : “The last time we spoke to a doctor they said Amelia only had a few months left.
“We thought of what she loves doing and she loves lights and music. I want to light up the whole house for her.
“We’ve asked a hospice for some charity buckets and we’ll have them outside if people want to make a donation.”Whitney said she and her husband Jonathan Morris were ‘in pieces’ when they found out the devastating news and that Christmas would be ‘bitter sweet’ this year.
She said: “We found out when she was about nine months old. We were in pieces. Amelia suffers from seizures, her eye sight is bad and she isn’t very mobile.
“We’re in and out of hospital with her all of the time. My husband had to quit work so we could be with Amelia.
“We just want to raise awareness about our campaign and also about the disease.”Whitney said Amelia’s little sister Emily, who is only one, can see that her sister is not well.
She said: “Emily can see that her big sister can’t play with other children. She knows something is wrong.“But Amelia doesn’t really know what’s going on, she can’t understand.”
The family’s campaign has so far raised £915 out of £1,000 target in eight days.
The Cats Foundation (Cure & Action for Tay-Sachs) have been in touch with the family providing care and support.
Daniel Lewi and his wife Patricia founded the charity when their six-year-old daughter Amelie was diagnosed with the condition.
Mr Lewi said:“As a charity we have a family support officer who visits the children, as they’re too sick to travel.
“We’ve had a lot of contact with Amelia and her family, it’s a really great campaign that they’re doing to give her the best Christmas.
“People have been extremely generous.”
Mirror Online
35 comments:
Wish dem d best...it is well with their soul
OMG! People are really suffering. I thank God Almighty for His Grace upon me and my household. Linda take note!
OMG! People are really suffering. I thank God Almighty for His Grace upon me and my household. Linda take note!
Precious Lord, heal and deliver dis child IJN so dat dis miracle wil b unto ur glory.
Welcome 2d month of November...
God will make someone sleepless for ur sake until u're elevated frm grass2grace & glory2glory IJN. Happy New Month.
What sort of disease is this? God! I feel for the parent.Beibg told u have few months to live is worst than being dead itself.The tension is 2nd to none
Eiya
#It WiLL oNLy gEt beTTer
#iT MuSt eNd IN pRAisE
How sad! I wish her a Merry xmas...
a.k.a EDWIN CHINEDU AZUBUKO said...
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But this is very painful i swear....
.
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***CURRENTLY IN JUPITER***
Touching...what a beautiful soul.
Touching
Dat wil b nice since daz what she love best
I can feel dia pain
Losing a child not gd at all
She wil liv IJN
Notin is impossible wit God
#oneandonlynwa@gmail.com#
So sad right now. I hope she enjoys her last christmas.
So touching
Whose report shall we believe,that of the world or that of the master JESUS? It's well
Awww I hope she gets her magical christmas.
This is disheartening and really sad..... I can feel their pain.
Doctor said but God hasn't
Have you ever thought prayers and Faith in God can change everything? You have nothing to loose by praying
How heartbreaking!
There is absolutely nothing impossible for God to do. It is well.
#TeamBlessed#
Quite sad!
I pray for this child. Command that Nervous condition to be reversed NOW! In Jesus' name. Amen .
GOD CAN HEAL HER. THEY SHOULD STOP BEHAVING AS IF THE DOCTOR HAS D FINAL SAY. WISHING A SPEEDY HEALING.
GOD CAN HEAL HER. THEY SHOULD STOP BEHAVING AS IF THE DOCTOR HAS D FINAL SAY. WISHING A SPEEDY HEALING.
So sad. TIMILEYIN BLESSING
Sad
It is well with her, God will shock them with a miracle and heal her
It is well with her, God will shock them with a miracle and heal her
It is well with her, God will shock them with a miracle and heal her
It is well with her, God will shock them with a miracle and heal her
It is well with her, God will shock them with a miracle and heal her
Linda tell her mum to bring her to Shiloh this December as its around the conner,she I'd still a kid to die now
Doctor does not hold the key to her life but God did. I wish Amelia Morris God's Divine healing in Jesus name Amen.
Linda pls tell her to bring her baby to the synagogue church of all nation prophet TB Joshua will heal her her baby will live......
really sad.
God will heal her & she will not die. Just believe in your heart that God is able
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